Invisible Disease Friday

I really needed a day off.

As each day went on, I had been getting more and more worn out, more and more unable to get up when laying down, more and more exhausted. So a couple of days ago, I decided that since one class was done and the other two were doing finals reviews, I was going to take today off, sleep in, be a lazy bum and not take care of anyone but myself.

Instead, I got stuck carrying the baby down the full flight of stairs that lead to my front door to take her to daycare so I could have a day alone. I got stuck going to campus and taking care of some missing equipment out of my drawer in chem lab. And out of the goodness of my heart I made a lunch run for Lord Imp, who is feeling crappy and I knew was going to need to eat.

And now all I want to do is cry. Because I don’t get to take care of myself and only myself.

All I wanted was 36 hours of not doing anything – not getting out of bed, not cooking, not cleaning, not doing homework and not taking the baby. Instead, I got out of bed at 7:30, struggled down the stairs, took care of the baby for a bit, took a nap, woke up and struggled up and down the stairs several times, struggled to get the baby changed and dressed, struggled to get her in the car seat and prayed as I teetered precariously down the stairs carrying her to the car. In the middle of all that, I had to deal with listening to Lord Imp bitching about how tired he was and how he didn’t feel well.

I really wanted to scream this, but didn’t. So I’m going to scream it here:

WELCOME TO MY WORLD.

I am tired ALL THE TIME. It is not uncommon for me to wake up and legitimately wonder if I have the physical capability of getting out of bed. It is not uncommon for me to not be able to move without an exceeding amount of effort. It is not uncommon for me to fall asleep in classes or want to take naps.

BUT I STILL GET STUFF DONE, and with minimal complaining.

I still do laundry. I still do dishes. I still make the baby breakfast and get her dressed. I still vacuum. I still go to class. I still study. I still do research. I still go to work.

EVERY SINGLE DAY. Despite feeling the same way you are (minus the congestion). My head is ALWAYS foggy. I am ALWAYS tired. And I am ALWAYS woozy.

BUT I STILL GO ON.

Don’t EVER mistake the fact that I am still plugging on without complaint as that I am fine. I AM NOT FINE. I am only moving because my options are to keep going or to die.

And I would kinda like to keep going.

The sad truth is, I’ve been taking spoons from the next day for a while now. And today I woke up with very few of them. And instead of trying to regain my spoon count, I spent today spending them.

I sent a copy of the Spoon Theory to Lord Imp. I hope he finally gets it.

</rant>

Advertisements

2 thoughts on “Invisible Disease Friday

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s